Lance was born a perfect little baby. Then he had hydrocephalus at 2 months, followed by 4 malfunctions. The Doctor's never looked into why and we kept trucking along. At 10 months, in July 1996, we took him back up to LSPCH @Stanford for what we thought was another malfunction. It wasn't, but we got a call from the Dr that the tech saw a shadow and they wanted to know what it was. We went back up, he was sedated and had an MRI. We had our answer: Pinealblastoma. A brain tumor the size of a golf ball was in my baby boy's brain. On September 26, 1996, just 25 days after his 1st birthday he had a 6-hour surgery to remove about 80-90% of it. They couldn't take it all out without causing too much damage. We went home, he was on steroids, and waited for him to heal. Then 6 weeks later we started chemo. This is the part that most don't understand, chemo wasn't going to work, we were hoping it'd slow the progression until he was 3. Then we'd do radiation to the brain and spine. That was the plan, to wait because radiation to the brain and spine of a baby under 3 causes learning delays and cognitive issues. December 1996, we had a repeat MRI and found that chemo wasn't working. The tumor was back and we had no choice he had to start radiation. January of 1997, at 16 months old we traveled daily to Stanford, where Lance was sedated for 10 minutes of radiation. March 5th, 1997 was his last day. He's been in long-term remission since. Now at 27, we live with the complications of being a baby born with a brain tumor. He started puberty at 7 and had to have depo to stop it. He had growth hormone injections daily from age 3 to 13 because he wasn't producing any and wasn't growing. He is on thyroid medication. Then at age 17 in August of that year, he started having seizures. That along with short-term memory, OCD, Autism, and learning and cognitive delays have led to him being challenged. He's here, he's the sweetest person but his life isn't like your average 27-year-old.
He's at a day program and because of the seizures, they are having a hard time getting him a job. He volunteers at the library arranging books and stuff. He helps around the house, loves animals, and helps at home, and with family. He loves Legos and video games. ~ Charlotte (Lance's Mom)